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Gene Defect Linked to Disfiguring Disorder | National Institutes of Health  (NIH)
Gene Defect Linked to Disfiguring Disorder | National Institutes of Health (NIH)

212 - Joe Lang of Sacramento, CA, Whose Daughter Jordan is the Namesake for Jordan  Syndrome & Jordan's Guardian Angels - 21st Century Dads
212 - Joe Lang of Sacramento, CA, Whose Daughter Jordan is the Namesake for Jordan Syndrome & Jordan's Guardian Angels - 21st Century Dads

Resource Center – Jordan's Guardian Angels
Resource Center – Jordan's Guardian Angels

Without this place, I honestly don't know what our family would do' -  Eternity News
Without this place, I honestly don't know what our family would do' - Eternity News

A Tragedy in the Kennedy Family Saved My Preemie — and I Got to Thank Them
A Tragedy in the Kennedy Family Saved My Preemie — and I Got to Thank Them

Jordan's Story - Triumphing Over 16p11.2 Duplication Syndrome | Children's  National Hospital
Jordan's Story - Triumphing Over 16p11.2 Duplication Syndrome | Children's National Hospital

California lobbyist fights for his daughter, with Legislature's help -  CalMatters
California lobbyist fights for his daughter, with Legislature's help - CalMatters

Jordan's Syndrome on Twitter: "Living with Jordan's Syndrome can be tough-  but our #RareWarriors are tougher 💪 Want to follow Hailey's journey? Check  out @MamaBearForRare across platforms. Caption: The video pans over
Jordan's Syndrome on Twitter: "Living with Jordan's Syndrome can be tough- but our #RareWarriors are tougher 💪 Want to follow Hailey's journey? Check out @MamaBearForRare across platforms. Caption: The video pans over

Jordans' anomaly - Wikipedia
Jordans' anomaly - Wikipedia

Resource Center – Jordan's Guardian Angels
Resource Center – Jordan's Guardian Angels

Jordan's Journey - Dravet Syndrome - YouTube
Jordan's Journey - Dravet Syndrome - YouTube

Having my legs cut off was the best thing that I've ever done - Mirror  Online
Having my legs cut off was the best thing that I've ever done - Mirror Online

Jordan's Syndrome (@JordansGAngels) / Twitter
Jordan's Syndrome (@JordansGAngels) / Twitter

Having my legs cut off was the best thing that I've ever done - Mirror  Online
Having my legs cut off was the best thing that I've ever done - Mirror Online

What is Jordan's Syndrome? - Mama Bear for Rare
What is Jordan's Syndrome? - Mama Bear for Rare

The unanswered questions of Alzheimer's patients with Down syndrome lead to  unabashed compassion
The unanswered questions of Alzheimer's patients with Down syndrome lead to unabashed compassion

Jordan's Syndrome (@JordansGAngels) / Twitter
Jordan's Syndrome (@JordansGAngels) / Twitter

Jordan's Syndrome (@JordansGAngels) / Twitter
Jordan's Syndrome (@JordansGAngels) / Twitter

Jordan's Guardian Angels - Vision differences are another area flagged as a  concern within the Jordan's Syndrome community. The challenges include  nystagmus, strabismus, amblyopia, and nearsightedness to name a few.  Glasses and
Jordan's Guardian Angels - Vision differences are another area flagged as a concern within the Jordan's Syndrome community. The challenges include nystagmus, strabismus, amblyopia, and nearsightedness to name a few. Glasses and

Jordan's Syndrome (@JordansGAngels) / Twitter
Jordan's Syndrome (@JordansGAngels) / Twitter

In Time to Help Jessie | Emory Medicine Magazine | Emory University
In Time to Help Jessie | Emory Medicine Magazine | Emory University

What is Jordan's Syndrome? - Mama Bear for Rare
What is Jordan's Syndrome? - Mama Bear for Rare

The Foundation – Jordan's Guardian Angels
The Foundation – Jordan's Guardian Angels

Mama Bear Knows Best: A Jordan's Syndrome Story Part 2 - Patient Worthy
Mama Bear Knows Best: A Jordan's Syndrome Story Part 2 - Patient Worthy